National Organization for Rare Disorders, Inc.
It is possible that the main title of the report Neonatal Hemochromatosis is not the name you expected. Please check the synonyms listing to find the alternate name(s) and disorder subdivision(s) covered by this report.
Neonatal hemochromatosis is a rare disorder affecting newborns. It is characterized by liver disease associated with the accumulation of excess iron in the liver and other areas of the body. In most cases, signs of neonatal hemochromatosis are apparent within 48 hours of birth. In many cases, neonatal hemochromatosis rapidly progresses to cause life-threatening complications such as liver failure. However, researchers now believe that neonatal hemochromatosis represents a spectrum of disease and some infants are less severely affected than others. There is a high risk of recurrence in subsequent pregnancies of women who have had a child with neonatal hemochromatosis. Although the exact cause of the disorder is not fully understood, researchers believe most cases of neonatal hemochromatosis result from maternal fetal alloimmunity, a condition in which antibodies from the mother travel over the placenta and mistakenly attack the fetus.
March of Dimes Birth Defects Foundation
1275 Mamaroneck Avenue
White Plains, NY 10605
Iron Overload Diseases Association, Inc.
525 Mayflower Road
West Palm Beach, Fl 33405
American Liver Foundation
39 Broadway, Suite 2700
New York, NY 10006
Children's Liver Disease Foundation
36 Great Charles Street
Birmingham, Intl B3 3JY
Tel: +44 (0) 121 212 3839
Fax: +44 (0) 121 212 4300
British Liver Trust
2 Southampton Road
Ringwood, Intl BH24 1HY
Tel: 01425 481320
Fax: 01425 481335
Tel: 0800 652 7330
American Hemochromatosis Society
4044 W. Lake Mary Blvd.
Suite 104 PMB 416
Lake Mary, FL 32746-2012
Iron Disorders Institute
PO Box 675
Taylors, SC 29687
Genetic and Rare Diseases (GARD) Information Center
PO Box 8126
Gaithersburg, MD 20898-8126
For a Complete Report
This is an abstract of a report from the National Organization for Rare Disorders (NORD). A copy of the complete report can be downloaded free from the NORD website for registered users. The complete report contains additional information including symptoms, causes, affected population, related disorders, standard and investigational therapies (if available), and references from medical literature. For a full-text version of this topic, go to MyD-H, the Dartmouth-Hitchcock patient portal. You must be a registered MyD-H user for the Lebanon, Manchester, or Nashua locations to access this site.
The information provided in this report is not intended for diagnostic purposes. It is provided for informational purposes only. NORD recommends that affected individuals seek the advice or counsel of their own personal physicians.
It is possible that the title of this topic is not the name you selected. Please check the Synonyms listing to find the alternate name(s) and Disorder Subdivision(s) covered by this report
This disease entry is based upon medical information available through the date at the end of the topic. Since NORD's resources are limited, it is not possible to keep every entry in the Rare Disease Database completely current and accurate. Please check with the agencies listed in the Resources section for the most current information about this disorder.
For additional information and assistance about rare disorders, please contact the National Organization for Rare Disorders at P.O. Box 1968, Danbury, CT 06813-1968; phone (203) 744-0100; web site www.rarediseases.org or email email@example.com
Last Updated: 9/10/2009
Copyright 2009 National Organization for Rare Disorders, Inc.
Healthwise, Healthwise for every health decision, and the Healthwise logo are trademarks of Healthwise, Incorporated.