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Multiple Endocrine Neoplasia Type 1

National Organization for Rare Disorders, Inc.

Important

It is possible that the main title of the report Multiple Endocrine Neoplasia Type 1 is not the name you expected. Please check the synonyms listing to find the alternate name(s) and disorder subdivision(s) covered by this report.

Synonyms

  • MEN-1
  • MEN-1 syndrome
  • multiple endocrine adenomatosis
  • Wermer's syndrome

Disorder Subdivisions

  • None

General Discussion

Multiple endocrine neoplasia (MEN) type 1 is a rare genetic disorder in which benign (noncancerous) tumors arise from the cells of various glands of the endocrine system. The endocrine system is the network of glands that secrete hormones into the bloodstream where they travel to various areas of the body. These hormones regulate the chemical processes (metabolism) that influence the function of various organs and activities within the body. Hormones are involved in numerous vital processes including regulating heart rate, body temperature and blood pressure as well as cell differentiation and growth and also in modulation of several metabolic processes. In individuals with MEN type 1, benign tumors develop in multiple endocrine glands, most often the parathyroid, pancreas and pituitary glands. These affected glands secrete excessive amounts of hormones into the bloodstream, which can result in a variety of symptoms. Some benign tumors associated with MEN type 1 can become malignant (cancerous). MEN type 1 can run in families or can occur as the result of a new gene mutation in the affected person.

Resources

Pituitary Network Association

P.O. Box 1958

Thousand Oaks, CA 91358

USA

Tel: (805)499-9973

Fax: (805)480-0633

Email: info@pituitary.org

Internet: http://www.pituitary.org



American Cancer Society, Inc.

250 Williams NW St

Ste 6000

Atlanta, GA 30303

USA

Tel: (404)320-3333

Tel: (800)227-2345

TDD: (866)228-4327

Internet: http://www.cancer.org



NIH/National Institute of Diabetes, Digestive & Kidney Diseases

Office of Communications & Public Liaison

Bldg 31, Rm 9A06

31 Center Drive, MSC 2560

Bethesda, MD 20892-2560

Tel: (301)496-3583

Email: NDDIC@info.niddk.nih.gov

Internet: http://www2.niddk.nih.gov/



Canadian Multiple Endocrine Neoplasia Society, Inc.

1432 107th Street

North Battleford, S9A 19

Canada

Tel: 3064458436

Fax: 3064458436

Email: hockey_freak99@hotmail.com



Carcinoid Cancer Foundation

333 Mamaroneck Avenue #492

White Plains, NY 10605

USA

Tel: (914)683-1001

Fax: (914)683-0183

Tel: (888)722-3132

Email: carcinoid@optonline.net

Internet: http://www.carcinoid.org



Hormone Health Network

8401 Connecticut Avenue

Suite 900

Chevy Chase, MD 20815-5817

Fax: (310)941-0259

Tel: (800)467-6663

Email: hormone@endo-society.org

Internet: http://www.hormone.org/



Pituitary Foundation

PO Box 1944

Bristol, BS99 2UB

United Kingdom

Tel: 08454500376

Fax: 01179330910

Tel: 08454500375

Email: helpline@pituitary.org.uk

Internet: http://www.pituitary.org.uk



Association for Multiple Endocrine Neoplasia Disorders (AMEND)

The Warehouse

No. 1 Draper Street

Royal Tunbridge Wells

Kent, TN4 0PG

United Kingdom

Tel: 00441892516076

Fax: 00441892516076

Email: jo.grey@amend.org.uk

Internet: http://www.amend.org.uk



NET Patient Foundation

Boxtrees Farm

The Farm House

Stratford Road

Hockley Heath, B94 6EA

United Kingdom

Tel: 08004346476

Internet: http://www.netpatientfoundation.org



American Multiple Endocrine Neoplasia Support

1027 Hampshire Drive

Maryville, TN 37801

Tel: (865)238-5872

Fax: (865)238-5844

Tel: (866)612-8579

Email: Linda@hagemanfoundation.org

Internet: http://www.amensupport.org



Pheo Para Troopers

P.O. Box 2064

Kokomo, IN 46904

Email: info@pheoparatroopers.org

Internet: http://www.pheoparatroopers.org



Hageman Foundation

1027 Hampshire Drive

Maryville, TN 37801

Tel: (865)238-5842

Fax: (865)238-5844

Tel: (866)612-8579

Email: Info@HagemanFoundation.org

Internet: http://www.HagemanFoundation.org



For a Complete Report

This is an abstract of a report from the National Organization for Rare Disorders (NORD). A copy of the complete report can be downloaded free from the NORD website for registered users. The complete report contains additional information including symptoms, causes, affected population, related disorders, standard and investigational therapies (if available), and references from medical literature. For a full-text version of this topic, go to MyD-H, the Dartmouth-Hitchcock patient portal. You must be a registered MyD-H user for the Lebanon, Manchester, or Nashua locations to access this site.

The information provided in this report is not intended for diagnostic purposes. It is provided for informational purposes only. NORD recommends that affected individuals seek the advice or counsel of their own personal physicians.

It is possible that the title of this topic is not the name you selected. Please check the Synonyms listing to find the alternate name(s) and Disorder Subdivision(s) covered by this report

This disease entry is based upon medical information available through the date at the end of the topic. Since NORD's resources are limited, it is not possible to keep every entry in the Rare Disease Database completely current and accurate. Please check with the agencies listed in the Resources section for the most current information about this disorder.

For additional information and assistance about rare disorders, please contact the National Organization for Rare Disorders at P.O. Box 1968, Danbury, CT 06813-1968; phone (203) 744-0100; web site www.rarediseases.org or email orphan@rarediseases.org

Last Updated:  5/7/2012

Copyright  2009, 2012 National Organization for Rare Disorders, Inc.

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