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Reflex Sympathetic Dystrophy Syndrome

National Organization for Rare Disorders, Inc.

Important

It is possible that the main title of the report Reflex Sympathetic Dystrophy Syndrome is not the name you expected. Please check the synonyms listing to find the alternate name(s) and disorder subdivision(s) covered by this report.

Synonyms

  • Algodystrophy
  • Algoneurodystrophy
  • Causalgia Syndrome (Major)
  • Reflex Neurovascular Dystrophy
  • RSDS
  • Sudeck's Atrophy
  • Complex Regional Pain Syndrome

Disorder Subdivisions

  • None

General Discussion

Reflex sympathetic dystrophy syndrome (RSDS), also known as complex regional pain syndrome, is a rare disorder of the sympathetic nervous system that is characterized by chronic, severe pain. The sympathetic nervous system is that part of the autonomic nervous system that regulates involuntary functions of the body such as increasing heart rate, constricting blood vessels, and increasing blood pressure. Excessive or abnormal responses of portions of the sympathetic nervous system are thought to be responsible for the pain associated with reflex sympathetic dystrophy syndrome.



The symptoms of reflex sympathetic dystrophy syndrome typically begin with burning pain, especially in an arm, finger(s), palm of the hand(s), and/or shoulder(s). In some individuals, RSDS may occur in one or both legs or it may be localized to one knee or hip. Frequently, RSDS may be misdiagnosed as a painful nerve injury. The skin over the affected area(s) may become swollen (edema) and inflamed. Affected skin may be extremely sensitive to touch and to hot or cold temperatures (cutaneous hypersensitivity). The affected limb(s) may perspire excessively and be warm to the touch (vasomotor instability). The exact cause of RSDS is not fully understood, although it may be associated with injury to the nerves, trauma, surgery, atherosclerotic cardiovascular disease, infection, or radiation therapy.

Resources

Reflex Sympathetic Dystrophy Syndrome Association of America

PO Box 502

Milford, CT 06460

Tel: (203)877-3790

Fax: (203)882-8362

Tel: (877)662-7737

Email: info@rsds.org

Internet: http://www.rsds.org



American Chronic Pain Association

P.O. Box 850

Rocklin, CA 95677

USA

Tel: (916)632-0922

Fax: (916)652-8190

Tel: (800)533-3231

Email: ACPA@theacpa.org

Internet: http://www.theacpa.org



Arthritis Foundation

1330 West Peachtree Street, Suite 100

Atlanta, GA 30309

USA

Tel: (404)872-7100

Tel: (800)283-7800

Email: arthritisfoundation@arthritis.org

Internet: http://www.arthritis.org



NIH/National Institute of Neurological Disorders and Stroke

P.O. Box 5801

Bethesda, MD 20824

Tel: (301)496-5751

Fax: (301)402-2186

Tel: (800)352-9424

TDD: (301)468-5981

Internet: http://www.ninds.nih.gov/



American Pain Society

4700 West Lake Avenue

Glenview, IL 60025

Tel: (847)375-4715

Fax: (866)574-2654

Email: info@ampainsoc.org

Internet: http://www.ampainsoc.org



Pain.com

c/o Dannemiller, Inc.

5711 Northwest Parkway

San Antonio, TX 78246

Tel: (210)641-8311

Fax: (210)641-8329

Email: editor@pain.com

Internet: http://www.pain.com



American RSDHope

P.O. Box 875

Harrison, ME 04040-0875

USA

Tel: (207)583-4589

Fax: (207)583-4978

Email: red_32@roadrunner.com

Internet: http://www.rsdhope.org



International Association for the Study of Pain

IASP Secretariat

1510 H Street NW

Suite 600

Washington, DC 20005-1020

Tel: (202)524-5300

Fax: (202)524-5301

Email: IASPdesk@iasp-pain.org

Internet: http://www.iasp-pain.org



Genetic and Rare Diseases (GARD) Information Center

PO Box 8126

Gaithersburg, MD 20898-8126

Tel: (301)251-4925

Fax: (301)251-4911

Tel: (888)205-2311

TDD: (888)205-3223

Internet: http://rarediseases.info.nih.gov/GARD/



P.A.R.C. Promoting Awareness of RSD/CRPS in Canada

PO Box 21026

St. Catharines

Ontario, L2M 7X2

Canada

Tel: 9059340261

Email: carlayoung74@hotmail.com

Internet: http://www.rsdcanada.org/parc/english/index.html



Irish Chronic Pain Association

Coleraine House, Coleraine St.

Dublin, 7

Ireland

Tel: 35318047567

Fax: 35318047567

Email: info@chronicpain.ie

Internet: http://www.chronicpain.ie



Multiply, Inc.

6001 Park of Commerce Blvd. Suite 300

Boca Raton, FL 33487

USA

Internet: http://wristinstability.multiply.com/



For a Complete Report

This is an abstract of a report from the National Organization for Rare Disorders (NORD). A copy of the complete report can be downloaded free from the NORD website for registered users. The complete report contains additional information including symptoms, causes, affected population, related disorders, standard and investigational therapies (if available), and references from medical literature. For a full-text version of this topic, go to MyD-H, the Dartmouth-Hitchcock patient portal. You must be a registered MyD-H user for the Lebanon, Manchester, or Nashua locations to access this site.

The information provided in this report is not intended for diagnostic purposes. It is provided for informational purposes only. NORD recommends that affected individuals seek the advice or counsel of their own personal physicians.

It is possible that the title of this topic is not the name you selected. Please check the Synonyms listing to find the alternate name(s) and Disorder Subdivision(s) covered by this report

This disease entry is based upon medical information available through the date at the end of the topic. Since NORD's resources are limited, it is not possible to keep every entry in the Rare Disease Database completely current and accurate. Please check with the agencies listed in the Resources section for the most current information about this disorder.

For additional information and assistance about rare disorders, please contact the National Organization for Rare Disorders at P.O. Box 1968, Danbury, CT 06813-1968; phone (203) 744-0100; web site www.rarediseases.org or email orphan@rarediseases.org

Last Updated:  8/17/2007

Copyright  1986, 1987, 1994, 1995, 1996, 1997, 1998, 1999, 2000, 2004, 2007 National Organization for Rare Disorders, Inc.

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