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Fibromyalgia

National Organization for Rare Disorders, Inc.

Important

It is possible that the main title of the report Fibromyalgia is not the name you expected. Please check the synonyms listing to find the alternate name(s) and disorder subdivision(s) covered by this report.

Synonyms

  • Fibromyositis
  • Fibrositis
  • Muscular Rheumatism
  • Musculoskeletal Pain Syndrome
  • Nonarticular Rheumatism
  • Periarticular Fibrositis
  • Rheumatoid Myositis
  • Tension Myalgia

Disorder Subdivisions

  • None

General Discussion

Fibromyalgia is a chronic disorder characterized by pain throughout much of the body. The pain may begin gradually or have a sudden onset. Other symptoms are muscle spasms, fatigue, muscle tissue stiffness and non- restorative (unrefreshing) sleep. The exact cause of this disorder is unknown.



The terms Fibrositis, Fibromyositis, Periarticular Fibrositis and Rheumatoid Myositis are still being used by many to describe this condition. The ending of "itis" on each of these terms is actually incorrect. "Itis" means inflammation, and there is no inflammation in Fibromyalgia. The term Fibromyalgia has now become the accepted term, but many people continue to be diagnosed with the other synonyms. Tension Myalgia is another synonym that is currently being used.

Resources

National Chronic Fatigue Syndrome & Fibromyalgia Association

P.O. Box 18426

Kansas City, MO 64133

USA

Tel: (816)737-1343

Fax: (816)524-6782

Email: information@ncfsfa.org

Internet: http://www.ncfsfa.org



American Chronic Pain Association

P.O. Box 850

Rocklin, CA 95677

USA

Tel: (916)632-0922

Fax: (916)652-8190

Tel: (800)533-3231

Email: ACPA@theacpa.org

Internet: http://www.theacpa.org



American Autoimmune Related Diseases Association, Inc.

22100 Gratiot Ave.

Eastpointe, MI 48021

Tel: (586)776-3900

Fax: (586)776-3903

Tel: (800)598-4668

Email: aarda@aarda.org

Internet: http://www.aarda.org/



Arthritis Foundation

1330 West Peachtree Street, Suite 100

Atlanta, GA 30309

USA

Tel: (404)872-7100

Tel: (800)283-7800

Email: arthritisfoundation@arthritis.org

Internet: http://www.arthritis.org



NIH/National Institute of Arthritis and Musculoskeletal and Skin Diseases

Information Clearinghouse

One AMS Circle

Bethesda, MD 20892-3675

USA

Tel: (301)495-4484

Fax: (301)718-6366

Tel: (877)226-4267

TDD: (301)565-2966

Email: NIAMSinfo@mail.nih.gov

Internet: http://www.niams.nih.gov/



National CFIDS Foundation, Inc.

103 Aletha Road

Needham, MA 02492-3931

Tel: (781)449-3535

Fax: (781)449-8606

Email: info@ncf-net.org

Internet: http://www.ncf-net.org



CF-Alliance

P.O. Box 9204

Bardonia, NY 10954

Tel: (914)648-9197

Fax: (845)215-0041

Email: cf_alliance@yahoo.com

Internet: http://www.cfalliance.org/



Erythema Nodosum Yahoo Support Group

Internet: http://health.groups.yahoo.com/group/erythema_nodosum_Group/



Genetic and Rare Diseases (GARD) Information Center

PO Box 8126

Gaithersburg, MD 20898-8126

Tel: (301)251-4925

Fax: (301)251-4911

Tel: (888)205-2311

TDD: (888)205-3223

Internet: http://rarediseases.info.nih.gov/GARD/



Madisons Foundation

PO Box 241956

Los Angeles, CA 90024

Tel: (310)264-0826

Fax: (310)264-4766

Email: getinfo@madisonsfoundation.org

Internet: http://www.madisonsfoundation.org



Autoimmune Information Network, Inc.

PO Box 4121

Brick, NJ 08723

Fax: (732)543-7285

Email: autoimmunehelp@aol.com



Irish Chronic Pain Association

Coleraine House, Coleraine St.

Dublin, 7

Ireland

Tel: 35318047567

Fax: 35318047567

Email: info@chronicpain.ie

Internet: http://www.chronicpain.ie



KickAS.org

11688 North Sage Brook Road

Oro Valley, AZ 85737-7342

Tel: (520)544-3023

Fax: (520)544-3023

Email: kickas@gmail.com

Internet: http://www.kickas.org



European Society for Immunodeficiencies

1-3 rue de Chantepoulet

Geneva, CH 1211

Switzerland

Tel: 410229080484

Fax: 41229069140

Email: esid@kenes.com

Internet: http://www.esid.org



AutoImmunity Community

Email: moderator@autoimmunitycommunity.org

Internet: http://www.autoimmunitycommunity.org



Global Healthy Living Foundation (GHLF)

515 N. Midland Ave.

Upper Nyack, NY 10960

Tel: (845)348-0400

Fax: (845)348-0210

Tel: (800)701-8275

Email: contact@ghlf.org

Internet: http://www.ghlf.org/



For a Complete Report

This is an abstract of a report from the National Organization for Rare Disorders (NORD). A copy of the complete report can be downloaded free from the NORD website for registered users. The complete report contains additional information including symptoms, causes, affected population, related disorders, standard and investigational therapies (if available), and references from medical literature. For a full-text version of this topic, go to MyD-H, the Dartmouth-Hitchcock patient portal. You must be a registered MyD-H user for the Lebanon, Manchester, or Nashua locations to access this site.

The information provided in this report is not intended for diagnostic purposes. It is provided for informational purposes only. NORD recommends that affected individuals seek the advice or counsel of their own personal physicians.

It is possible that the title of this topic is not the name you selected. Please check the Synonyms listing to find the alternate name(s) and Disorder Subdivision(s) covered by this report

This disease entry is based upon medical information available through the date at the end of the topic. Since NORD's resources are limited, it is not possible to keep every entry in the Rare Disease Database completely current and accurate. Please check with the agencies listed in the Resources section for the most current information about this disorder.

For additional information and assistance about rare disorders, please contact the National Organization for Rare Disorders at P.O. Box 1968, Danbury, CT 06813-1968; phone (203) 744-0100; web site www.rarediseases.org or email orphan@rarediseases.org

Last Updated:  3/24/2008

Copyright  1991, 1993, 1996, 1997, 1998, 1999, 2002 National Organization for Rare Disorders, Inc.

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