Sturge Weber Syndrome
National Organization for Rare Disorders, Inc.
It is possible that the main title of the report Sturge Weber Syndrome is not the name you expected. Please check the synonyms listing to find the alternate name(s) and disorder subdivision(s) covered by this report.
- Dimitri Disease
- Encephalofacial Angiomatosis
- Encephalotrigeminal Angiomatosis
- Leptomeningeal Angiomatosis
- Meningeal Capillary Angiomatosis
- Sturge-Kalischer-Weber Syndrome
- Sturge-Weber Phakomatosis
Sturge-Weber syndrome is composed of three major symptoms. Excessive blood vessel growths (leptomeningeal angiomas) are accompanied by accumulations of calcium inside the brain, and seizures. Facial birth marks (nevus flammeus) appear usually on one side of the face. Angiomas similar to those found in the brain can develop inside the eye, often with secondary glaucoma. Hormone abnormalities have also been found to occur equally in males and females.
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NIH/National Institute of Neurological Disorders and Stroke
P.O. Box 5801
Bethesda, MD 20824
Vascular Birthmarks Foundation
P.O. Box 106
Latham, NY 12110
Genetic and Rare Diseases (GARD) Information Center
PO Box 8126
Gaithersburg, MD 20898-8126
PO Box 241956
Los Angeles, CA 90024
National Organization of Vascular Anomalies
PO Box 38216
Greensboro, NC 27438-8216
P.O. Box 1239
Aledo, TX 76008
Venous Disease Coalition
1075 S. Yukon Street, Suite 320
Lakewood, CO 80226
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It is possible that the title of this topic is not the name you selected. Please check the Synonyms listing to find the alternate name(s) and Disorder Subdivision(s) covered by this report
This disease entry is based upon medical information available through the date at the end of the topic. Since NORD's resources are limited, it is not possible to keep every entry in the Rare Disease Database completely current and accurate. Please check with the agencies listed in the Resources section for the most current information about this disorder.
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Last Updated: 5/1/2008
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