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Lupus

National Organization for Rare Disorders, Inc.

Important

It is possible that the main title of the report Lupus is not the name you expected. Please check the synonyms listing to find the alternate name(s) and disorder subdivision(s) covered by this report.

Synonyms

  • Disseminated lupus erythematosus
  • Lupus erythematosus

Disorder Subdivisions

  • Systemic lupus erythematosus (SLE)
  • Discoid lupus erythematosus (DLE)
  • Drug-induced lupus erythematosus

General Discussion

Lupus is a chronic, inflammatory autoimmune disorder affecting the connective tissue. In autoimmune disorders, the body's own immune system attacks healthy cells and tissues causing inflammation and malfunction of various organ systems. In lupus, the organ systems most often involved include the skin, kidneys, blood and joints. Many different symptoms are associated with lupus, and most affected individuals do not experience all of the symptoms. In some cases, lupus may be a mild disorder affecting only a few organ systems. In other cases, it may result in serious complications.



There are at least three forms of lupus: the classic form, systemic lupus erythematosus; a form that only affects the skin, discoid lupus erythematosus; and drug-induced lupus erythematosus. The term lupus is most often used to denote systemic lupus erythematosus.

Resources

American Juvenile Arthritis Organization

1330 West Peachtree Street, Suite 100

Atlanta, GA 30309

USA

Tel: (404)965-7624

Fax: (404)872-9559

Tel: (800)568-4045

Email: help@arthritis.org

Internet: http://www.arthritis.org



American Autoimmune Related Diseases Association, Inc.

22100 Gratiot Ave.

Eastpointe, MI 48021

Tel: (586)776-3900

Fax: (586)776-3903

Tel: (800)598-4668

Email: aarda@aarda.org

Internet: http://www.aarda.org/



Lupus Foundation of America, Inc.

2000 L Street NW

Suite 710

Washington, DC 20036

USA

Tel: (202)349-1155

Fax: (202)349-1156

Tel: (800)558-0121

Email: info@lupus.org

Internet: http://www.lupus.org



Arthritis Foundation

1330 West Peachtree Street, Suite 100

Atlanta, GA 30309

USA

Tel: (404)872-7100

Tel: (800)283-7800

Email: arthritisfoundation@arthritis.org

Internet: http://www.arthritis.org



NIH/National Institute of Arthritis and Musculoskeletal and Skin Diseases

Information Clearinghouse

One AMS Circle

Bethesda, MD 20892-3675

USA

Tel: (301)495-4484

Fax: (301)718-6366

Tel: (877)226-4267

TDD: (301)565-2966

Email: NIAMSinfo@mail.nih.gov

Internet: http://www.niams.nih.gov/



Lupus Canada

3555 14th Avenue, Unit #3,

Markham

Ontario, L3R 0H5

Canada

Tel: (905) 513-0004

Fax: (905) 513-9516

Tel: (800) 661-1468

Email: info@lupuscanada.org

Internet: http://www.lupuscanada.org



Cicatricial Alopecia Research Foundation

9300 Wilshire Blvd.

Suite 410

Beverly Hills, CA 90212

USA

Tel: (310)801-3450

Email: info@carfintl.org

Internet: http://www.carfintl.org



Erythema Nodosum Yahoo Support Group

Internet: http://health.groups.yahoo.com/group/erythema_nodosum_Group/



CNS Vasculitis Foundation

9930 Morningfield

San Antonio, TX 78250-3743

USA

Tel: (210)523-8234

Email: info@cnsvf.org

Internet: http://www.cnsvf.org



Genetic and Rare Diseases (GARD) Information Center

PO Box 8126

Gaithersburg, MD 20898-8126

Tel: (301)251-4925

Fax: (301)251-4911

Tel: (888)205-2311

TDD: (888)205-3223

Internet: http://rarediseases.info.nih.gov/GARD/



Lupus Society of Alberta

Suite 200, 1301 - 8 St. SW

Calgary Alberta, T2R 1B7

Canada

Tel: 4032287956

Fax: 4032287853

Tel: 8882429182

Email: lupuslsa@shaw.ca

Internet: http://www.lupus.ab.ca



Center for Peripheral Neuropathy

University of Chicago

5841 South Maryland Ave, MC 2030

Chicago, IL 60637

Tel: (773)702-5659

Fax: (773)702-5577

Internet: http://peripheralneuropathycenter.uchicago.edu/



Madisons Foundation

PO Box 241956

Los Angeles, CA 90024

Tel: (310)264-0826

Fax: (310)264-4766

Email: getinfo@madisonsfoundation.org

Internet: http://www.madisonsfoundation.org



Autoimmune Information Network, Inc.

PO Box 4121

Brick, NJ 08723

Fax: (732)543-7285

Email: autoimmunehelp@aol.com



APS Foundation of America

PO Box 801

La Crosse, WI 54602-0801

Tel: (608)782-2626

Fax: (608)782-6569

Email: apsfa@apsfa.org

Internet: http://www.apsfa.org



European Society for Immunodeficiencies

1-3 rue de Chantepoulet

Geneva, CH 1211

Switzerland

Tel: 410229080484

Fax: 41229069140

Email: esid@kenes.com

Internet: http://www.esid.org



AutoImmunity Community

Email: moderator@autoimmunitycommunity.org

Internet: http://www.autoimmunitycommunity.org



Kidney & Urology Foundation of America, Inc.

2 West 47th Street

Suite 401

New York, NY 10036

Tel: (212)629-9770

Fax: (212)629-5652

Tel: (800)633-6628

Email: info@kidneyurology.org

Internet: http://www.kidneyurology.org



Cogan's Contact Network

PO Box 145

Freehold, NJ 07728-0145

USA

Tel: (732)409-1031

Internet: http://www.coganssyndrome.info/



Australasian Blistering Diseases Foundation

St. George Hospital,

Department of Dermatology

Gray Street

Kogarah

Sydney, NSW 2217

Australia

Tel: 0291132088

Fax: 0291132886

Email: info@blisters.org.au

Internet: http://www.blisters.org.au/BDHome.html



For a Complete Report

This is an abstract of a report from the National Organization for Rare Disorders (NORD). A copy of the complete report can be downloaded free from the NORD website for registered users. The complete report contains additional information including symptoms, causes, affected population, related disorders, standard and investigational therapies (if available), and references from medical literature. For a full-text version of this topic, go to MyD-H, the Dartmouth-Hitchcock patient portal. You must be a registered MyD-H user for the Lebanon, Manchester, or Nashua locations to access this site.

The information provided in this report is not intended for diagnostic purposes. It is provided for informational purposes only. NORD recommends that affected individuals seek the advice or counsel of their own personal physicians.

It is possible that the title of this topic is not the name you selected. Please check the Synonyms listing to find the alternate name(s) and Disorder Subdivision(s) covered by this report

This disease entry is based upon medical information available through the date at the end of the topic. Since NORD's resources are limited, it is not possible to keep every entry in the Rare Disease Database completely current and accurate. Please check with the agencies listed in the Resources section for the most current information about this disorder.

For additional information and assistance about rare disorders, please contact the National Organization for Rare Disorders at P.O. Box 1968, Danbury, CT 06813-1968; phone (203) 744-0100; web site www.rarediseases.org or email orphan@rarediseases.org

Last Updated:  1/4/2008

Copyright  1984, 1985, 1987, 1988, 1990, 1992, 1993, 1994, 1995, 1996, 1997, 1998. 1999, 2000, 2002, 2003, 2004 National Organization for Rare Disorders, Inc.

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