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Syringomyelia

National Organization for Rare Disorders, Inc.

Important

It is possible that the main title of the report Syringomyelia is not the name you expected. Please check the synonyms listing to find the alternate name(s) and disorder subdivision(s) covered by this report.

Synonyms

  • Morvan Disease
  • Hydromyelia
  • Spinal Cord Cyst
  • Syringohydromyelia

Disorder Subdivisions

  • None

General Discussion

Syringomyelia is a neurological disorder characterized by the formation of a fluid-filled cyst (syrinx) within the spinal cord. This cyst may, for unknown reasons, expand during adolescence or the young adult years, destroying the center of the spinal cord as it does.



As the syrinx expands, it affects the nerves that stimulate the patient's legs, arms, back and shoulders. In turn, the affected individual may feel considerable pain and weakness, and may lose the ability to distinguish hot from cold objects. The combination of symptoms and signs may vary considerably from person to person, depending on where in the spine the syrinx is located and how much it expands over time. Often, the symptoms develop slowly. Unless the condition is treated surgically, it may lead to neurological deficits and chronic, intense pain.

Resources

American Syringomyelia & Chiari Alliance Project

P.O. Box 1586

Longview, TX 75606-1586

Tel: (903)236-7079

Fax: (903)757-7456

Tel: (800)272-7282

Email: info@asap.org

Internet: http://www.asap.org



Canadian Syringomyelia Network

69 Penny Crescent

Markham

Ontario, L3P 5X7

Canada

Tel: 9054718278

Fax: 9059444844

Email: barb@csn.ca

Internet: http://www.csn.ca/



World Arnold Chiari Malformation Association

31 Newtown Woods Road

Newtown Square, PA 19073

Tel: (610)353-4737

Email: chiari-owner@yahoogroups.com

Internet: http://www.wacma.com



Christopher & Dana Reeve Foundation

636 Morris Turnpike, Suite 3A

Short Hills, NJ 07078

USA

Tel: (973)379-2690

Fax: (973)912-9433

Tel: (800)225-0292

Email: prc@ChristopherReeve.org

Internet: http://www.christopherreeve.org



Genetic and Rare Diseases (GARD) Information Center

PO Box 8126

Gaithersburg, MD 20898-8126

Tel: (301)251-4925

Fax: (301)251-4911

Tel: (888)205-2311

TDD: (888)205-3223

Internet: http://rarediseases.info.nih.gov/GARD/



Madisons Foundation

PO Box 241956

Los Angeles, CA 90024

Tel: (310)264-0826

Fax: (310)264-4766

Email: getinfo@madisonsfoundation.org

Internet: http://www.madisonsfoundation.org



Christopher S. Burton Syringomyelia Foundation, Inc.

P.O. Box 100335

Fort Lauderdale, FL 33310-0335

Tel: (954)727-5137

Fax: (954)636-2409

Email: info@thesmfoundation.org

Internet: http://www.thesmfoundation.org



Conquer Chiari

320 Osprey Court

Wexford, PA 15090

USA

Tel: (724)940-0116

Fax: (724)940-0172

Email: director@conquerchiari.org

Internet: http://www.conquerchiari.org



Chiari & Syringomyelia Foundation

290 Broadhollow Road, Suite 210E

Melville, NY 11747

Tel: (516)228-3565

Internet: http://www.CSFinfo.org



For a Complete Report

This is an abstract of a report from the National Organization for Rare Disorders (NORD). A copy of the complete report can be downloaded free from the NORD website for registered users. The complete report contains additional information including symptoms, causes, affected population, related disorders, standard and investigational therapies (if available), and references from medical literature. For a full-text version of this topic, go to MyD-H, the Dartmouth-Hitchcock patient portal. You must be a registered MyD-H user for the Lebanon, Manchester, or Nashua locations to access this site.

The information provided in this report is not intended for diagnostic purposes. It is provided for informational purposes only. NORD recommends that affected individuals seek the advice or counsel of their own personal physicians.

It is possible that the title of this topic is not the name you selected. Please check the Synonyms listing to find the alternate name(s) and Disorder Subdivision(s) covered by this report

This disease entry is based upon medical information available through the date at the end of the topic. Since NORD's resources are limited, it is not possible to keep every entry in the Rare Disease Database completely current and accurate. Please check with the agencies listed in the Resources section for the most current information about this disorder.

For additional information and assistance about rare disorders, please contact the National Organization for Rare Disorders at P.O. Box 1968, Danbury, CT 06813-1968; phone (203) 744-0100; web site www.rarediseases.org or email orphan@rarediseases.org

Last Updated:  9/23/2007

Copyright  1987, 1989, 1996, 1998, 1999, 2006, 2007 National Organization for Rare Disorders, Inc.

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