Idiopathic Pulmonary Fibrosis
National Organization for Rare Disorders, Inc.
It is possible that the main title of the report Idiopathic Pulmonary Fibrosis is not the name you expected. Please check the synonyms listing to find the alternate name(s) and disorder subdivision(s) covered by this report.
- Alveolocapillary block
- Cryptogenic Fibrosing Alveolitis
- Diffuse Fibrosing Alveolitis
- Fibrosing Alveolitis
- Hamman-Rich Syndrome
- Interstitial Diffuse Pulmonary Fibrosis
Idiopathic pulmonary fibrosis is an inflammatory lung disorder of unknown origin (idiopathic) characterized by abnormal formation of fibrous tissue (fibrosis) between the tiny air sacs (alveoli) or ducts of the lungs. Coughing and rapid, shallow breathing occur with moderate exercise. The skin may appear slightly bluish (cyanotic) due to lack of circulating oxygen. Complications such as infection, emphysema or heart problems may develop.
Scleroderma Research Foundation
220 Montgomery Street
San Francisco, CA 94104
American Autoimmune Related Diseases Association, Inc.
22100 Gratiot Ave.
East Detroit, MI 48021
American Lung Association
1301 Pennsylvania Ave NW
Washington, DC 20004
NIH/National Heart, Lung and Blood Institute
P.O. Box 30105
Bethesda, MD 20892-0105
MUMS National Parent-to-Parent Network
150 Custer Court
Green Bay, WI 54301-1243
Coalition for Pulmonary Fibrosis
10866 W Washington Blvd Ste 343
Culver City, CA 90232
Pulmonary Fibrosis Foundation
811 West Evergreen Avenue, Suite 303
Chicago, IL 60642-2642
Genetic and Rare Diseases (GARD) Information Center
PO Box 8126
Gaithersburg, MD 20898-8126
Autoimmune Information Network, Inc
PO Box 4121
Brick, NJ 08723
European Society for Immunodeficiencies
1-3 rue de Chantepoulet
Geneva, CH 1211
Tel: +31 73-6992965
Fax: +41 22 906 91 40
Global Fibrosis Foundation
5036 Dr. Phillips Boulevard
Orlando, FL 32819
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The information provided in this report is not intended for diagnostic purposes. It is provided for informational purposes only. NORD recommends that affected individuals seek the advice or counsel of their own personal physicians.
It is possible that the title of this topic is not the name you selected. Please check the Synonyms listing to find the alternate name(s) and Disorder Subdivision(s) covered by this report
This disease entry is based upon medical information available through the date at the end of the topic. Since NORD's resources are limited, it is not possible to keep every entry in the Rare Disease Database completely current and accurate. Please check with the agencies listed in the Resources section for the most current information about this disorder.
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Last Updated: 3/16/2007
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