Pierre Robin Sequence
National Organization for Rare Disorders, Inc.
It is possible that the main title of the report Pierre Robin Sequence is not the name you expected. Please check the synonyms listing to find the alternate name(s) and disorder subdivision(s) covered by this report.
- Pierre Robin Anomalad
- Pierre Robin Complex
- Robin Anomalad
- Robin Syndrome
- Glossoptosis, Micrognathia, and Cleft Palate
- Pierre Robin
- Pierre Robin Deformity
- Pierre Robin Malformation Sequence
- Pierre Robin Syndrome
- Pierre Robin Triad
- Robin Complex
Pierre Robin sequence is characterized by an unusually small lower jaw (micrognathia) and downward displacement of the tongue (glossoptosis). Some infants also have an abnormal opening in the roof of the mouth (cleft palate); both the soft and hard palate can be affected.
Children's Craniofacial Association
13140 Coit Road
Dallas, TX 75240
FACES: The National Craniofacial Association
PO Box 11082
Chattanooga, TN 37401
22 Ingersoll Road
P.O. Box 920554
Wellesley, MA 02181
P.O. Box 5153
Stockton, CA 95205-0153
Pierre Robin Network
Quincy, IL 62305
Birth Defect Research for Children, Inc.
976 Lake Baldwin Lane
Orlando, FL 32814
MUMS National Parent-to-Parent Network
150 Custer Court
Green Bay, WI 54301-1243
Genetic and Rare Diseases (GARD) Information Center
PO Box 8126
Gaithersburg, MD 20898-8126
PO Box 241956
Los Angeles, CA 90024
Let Them Hear Foundation
1900 University Avenue, Suite 101
East Palo Alto, CA 94303
Cleft Lip and Palate Foundation of Smiles
2044 Michael Ave SW
Wyoming, MI 49509
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The information provided in this report is not intended for diagnostic purposes. It is provided for informational purposes only. NORD recommends that affected individuals seek the advice or counsel of their own personal physicians.
It is possible that the title of this topic is not the name you selected. Please check the Synonyms listing to find the alternate name(s) and Disorder Subdivision(s) covered by this report
This disease entry is based upon medical information available through the date at the end of the topic. Since NORD's resources are limited, it is not possible to keep every entry in the Rare Disease Database completely current and accurate. Please check with the agencies listed in the Resources section for the most current information about this disorder.
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Last Updated: 4/12/2008
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