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Pick Disease

National Organization for Rare Disorders, Inc.

Important

It is possible that the main title of the report Pick Disease is not the name you expected. Please check the synonyms listing to find the alternate name(s) and disorder subdivision(s) covered by this report.

Synonyms

  • diffuse degenerative cerebral disease
  • lobar atrophy of the brain
  • dementia with lobar atrophy and neuronal cytoplasmic inclusions
  • Pick disease of the brain
  • frontotemporal lobar degeneration

Disorder Subdivisions

  • frontotemporal dementia with parkinsonism-17
  • frontotemporal dementia associated with motor neuron disease
  • primary progressive aphasia (nonfluent type)
  • behavioral variant frontotemporal dementia
  • semantic dementia

General Discussion

Pick disease is a form of dementia characterized by behavioral changes such as deterioration of social skills and changes in personality. Intellectual impairment, memory loss and language deterioration may also occur. Most cases of Pick disease are sporadic in nature, but a genetic form of the disease is recognized. Although a progressive form of communication impairment (aphasia) may occur as part of Pick disease, people with Pick disease have other behavioral problems besides language and communication impairment.

Resources

WE MOVE (Worldwide Education and Awareness for Movement Disorders)

5731 Mosholu Avenue

Bronx, NY 10471

USA

Tel: (347)843-6132

Fax: (718)601-5112

Email: wemove@wemove.org

Internet: http://www.wemove.org



Parkinson's Disease Foundation, Inc.

1359 Broadway

Suite 1509

New York, NY 10018

Tel: (212)923-4700

Fax: (212)923-4778

Tel: (800)457-6676

Email: info@pdf.org

Internet: http://www.pdf.org



Alzheimer's Association

225 N. Michigan Avenue

17th Floor

Chicago, IL 60601

USA

Tel: (312)335-8700

Fax: (866)699-1246

Tel: (800)272-3900

TDD: (312)335-5886

Email: info@alz.org

Internet: http://www.alz.org



Alzheimer's Disease Education and Referral Center

P.O. Box 8250

Silver Spring, MD 20907-8250

Tel: (301)495-3311

Fax: (301)495-3334

Tel: (800)438-4380

Email: adear@nia.nih.gov

Internet: http://www.nia.nih.gov/alzheimers



NIH/National Institute on Aging

31 Center Drive, MSC 2292

Building 31

Room 5C27

Bethesda, MD 20892

Tel: (301)496-1752

Fax: (301)496-1072

Tel: (800)222-2225

TDD: (800)222-4225

Email: bapquery@nia.nih.gov

Internet: http://www.nih.gov/nia



NIH/National Institute of Neurological Disorders and Stroke

P.O. Box 5801

Bethesda, MD 20824

Tel: (301)496-5751

Fax: (301)402-2186

Tel: (800)352-9424

TDD: (301)468-5981

Internet: http://www.ninds.nih.gov/



Genetic and Rare Diseases (GARD) Information Center

PO Box 8126

Gaithersburg, MD 20898-8126

Tel: (301)251-4925

Fax: (301)251-4911

Tel: (888)205-2311

TDD: (888)205-3223

Internet: http://rarediseases.info.nih.gov/GARD/



C-Mac Informational Services, Inc.

120 Clinton Lane

Cookeville, TN 38501-8946

Tel: (931)268-1201

Email: caregiver_cmi@hotmail.com

Internet: http://www.caregivernews.org



Association for Frontotemporal Degeneration

Radnor Station Building #2, Suite 320

290 King of Prussia Road

Radnor, PA 19087

Tel: (267)514-7221

Tel: (866)507-7222

Email: info@theaftd.org

Internet: http://www.theaftd.org



For a Complete Report

This is an abstract of a report from the National Organization for Rare Disorders (NORD). A copy of the complete report can be downloaded free from the NORD website for registered users. The complete report contains additional information including symptoms, causes, affected population, related disorders, standard and investigational therapies (if available), and references from medical literature. For a full-text version of this topic, go to MyD-H, the Dartmouth-Hitchcock patient portal. You must be a registered MyD-H user for the Lebanon, Manchester, or Nashua locations to access this site.

The information provided in this report is not intended for diagnostic purposes. It is provided for informational purposes only. NORD recommends that affected individuals seek the advice or counsel of their own personal physicians.

It is possible that the title of this topic is not the name you selected. Please check the Synonyms listing to find the alternate name(s) and Disorder Subdivision(s) covered by this report

This disease entry is based upon medical information available through the date at the end of the topic. Since NORD's resources are limited, it is not possible to keep every entry in the Rare Disease Database completely current and accurate. Please check with the agencies listed in the Resources section for the most current information about this disorder.

For additional information and assistance about rare disorders, please contact the National Organization for Rare Disorders at P.O. Box 1968, Danbury, CT 06813-1968; phone (203) 744-0100; web site www.rarediseases.org or email orphan@rarediseases.org

Last Updated:  4/9/2012

Copyright  1989, 1990, 1996, 1997, 1998, 2000, 2009, 2012 National Organization for Rare Disorders, Inc.

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