National Organization for Rare Disorders, Inc.
It is possible that the main title of the report Coats Disease is not the name you expected. Please check the synonyms listing to find the alternate name(s) and disorder subdivision(s) covered by this report.
Coats disease is a rare disorder characterized by abnormal development of the blood vessels of the nerve-rich membrane lining the eyes (retina). Affected individuals may experience loss of vision and detachment of the retina. In most cases, only one eye is affected (unilateral). However, in rare cases, both eyes may be affected (bilateral Coats disease). In these bilateral cases, one eye is affected more than the other (asymmetric Coats disease). The specific cause of Coats disease is not known.
Foundation Fighting Blindness
7168 Columbia Gateway Drive, Suite 100
Columbia, MD 21046
111 E 59th St
New York, NY 10022-1202
National Association for Parents of Children with Visual Impairments (NAPVI)
P.O. Box 317
Watertown, MA 02272-0317
National Federation of the Blind
200 East Wells Street
at Jernigan Place
Baltimore, MD 21230
American Foundation for the Blind
2 Penn Plaza
New York, NY 10121
Blind Children's Fund
6761 W. US 12
PO Box 363
Three Oaks, MI 49128
American Council of the Blind
2200 Wilson Boulevard
Arlington, VA 22201
NIH/National Eye Institute
31 Center Dr
Bethesda, MD 20892-2510
MUMS National Parent-to-Parent Network
150 Custer Court
Green Bay, WI 54301-1243
MD Support - The Eyes of the Macular Degeneration Community
3600 Blue Ridge Blvd
Grandview, MO 64030
Genetic and Rare Diseases (GARD) Information Center
PO Box 8126
Gaithersburg, MD 20898-8126
Jack McGovern Coats Disease Foundation
20 Park Road, Suite E
Burlingame, CA 94010
For a Complete Report
This is an abstract of a report from the National Organization for Rare Disorders (NORD). A copy of the complete report can be downloaded free from the NORD website for registered users. The complete report contains additional information including symptoms, causes, affected population, related disorders, standard and investigational therapies (if available), and references from medical literature. For a full-text version of this topic, go to MyD-H, the Dartmouth-Hitchcock patient portal. You must be a registered MyD-H user for the Lebanon, Manchester, or Nashua locations to access this site.
The information provided in this report is not intended for diagnostic purposes. It is provided for informational purposes only. NORD recommends that affected individuals seek the advice or counsel of their own personal physicians.
It is possible that the title of this topic is not the name you selected. Please check the Synonyms listing to find the alternate name(s) and Disorder Subdivision(s) covered by this report
This disease entry is based upon medical information available through the date at the end of the topic. Since NORD's resources are limited, it is not possible to keep every entry in the Rare Disease Database completely current and accurate. Please check with the agencies listed in the Resources section for the most current information about this disorder.
For additional information and assistance about rare disorders, please contact the National Organization for Rare Disorders at P.O. Box 1968, Danbury, CT 06813-1968; phone (203) 744-0100; web site www.rarediseases.org or email email@example.com
Last Updated: 4/21/2008
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