National Organization for Rare Disorders, Inc.
It is possible that the main title of the report Craniosynostosis, Primary is not the name you expected. Please check the synonyms listing to find the alternate name(s) and disorder subdivision(s) covered by this report.
- coronal synostosis
- Kleeblattschadel deformity (cloverleaf skull)
- lambdoid synostosis
- metopic synostosis
- sagittal synostosis
Primary craniosynostosis is a general term for the improper development of the bones of the skull, which can result in an abnormal head shape in affected individuals. Craniosynostosis refers to the premature fusion of the fibrous joints (sutures) between certain bones of the skull. The severity of primary craniosynostosis can vary from one person to another. Intelligence is usually unaffected. Primary craniosynostosis may occur as an isolated finding or as part of a syndrome. The main treatment for primary craniosynostosis is surgery, but not all affected children will require surgery. The exact cause of primary craniosynostosis is unknown, although the skull abnormalities result from the abnormal hardening (ossification) of the cranial sutures. Primary craniosynostosis is distinguished from secondary craniosynostosis, which occurs because of a primary failure in brain growth.
Children's Craniofacial Association
13140 Coit Road
Dallas, TX 75240
FACES: The National Craniofacial Association
PO Box 11082
Chattanooga, TN 37401
P.O. Box 751112
Limekiln, PA 19535
National Craniofacial Foundation
3100 Carlisle Street
Dallas, TX 75204
Headlines - Craniofacial Support Group
128 Beesmoor Road
Bristol, BS36 2JP
Birth Defect Research for Children, Inc.
976 Lake Baldwin Lane
Orlando, FL 32814
Genetic and Rare Diseases (GARD) Information Center
PO Box 8126
Gaithersburg, MD 20898-8126
Cleft Lip and Palate Foundation of Smiles
2044 Michael Ave SW
Wyoming, MI 49509
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It is possible that the title of this topic is not the name you selected. Please check the Synonyms listing to find the alternate name(s) and Disorder Subdivision(s) covered by this report
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Last Updated: 5/24/2011
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