National Organization for Rare Disorders, Inc.
It is possible that the main title of the report Diencephalic Syndrome is not the name you expected. Please check the synonyms listing to find the alternate name(s) and disorder subdivision(s) covered by this report.
- Diencephalic Syndrome of Childhood
- Diencephalic Syndrome of Emaciation
- Paramedian Diencephalic Syndrome
- Russell's Diencephalic Cachexia
- Russell's Syndrome
The diencephalic syndrome is a very rare neurological disorder characterized by failure to thrive, abnormal thinness (emaciation), amnesia, intense sleepiness, unusual eye position and sometimes blindness. It is normally seen in infancy or early childhood but some cases have been reported in older children and even adults. Diencephalic syndrome is usually caused by a brain tumor such as a low-grade glioma or astrocytoma.
National Hydrocephalus Foundation
12413 Centralia Rd.
Lakewood, CA 90715-1653
4340 East West Highway Ste 950
Bethesda, MD 20814
American Cancer Society, Inc.
250 Williams NW St
Atlanta, GA 30303
Children's Brain Tumor Foundation
274 Madison Avenue, Suite 1004
New York, NY 10016
Brain Tumor Foundation for Children, Inc.
6065 Roswell Road Suite 505
Atlanta, GA 30328-4015
Rare Cancer Alliance
1649 North Pacana Way
Green Valley, AZ 85614
Genetic and Rare Diseases (GARD) Information Center
PO Box 8126
Gaithersburg, MD 20898-8126
PO Box 241956
Los Angeles, CA 90024
Pediatric Brain Tumor Foundation
302 Ridgefield Court
Asheville, NC 28806
Friends of Cancer Research
1800 M Street NW
Suite 1050 South
Washington, DC 22202
National Brain Tumor Society
124 Watertown Street, Suite 2D
Watertown, MA 02472
Tel: (800) 770-8287
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It is possible that the title of this topic is not the name you selected. Please check the Synonyms listing to find the alternate name(s) and Disorder Subdivision(s) covered by this report
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Last Updated: 6/25/2008
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