Epilepsy / Convulsive Disorders
Self Help Clearinghouse
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(BILINGUAL) National. 49 affiliates. Founded 1967. Information and support for people with epilepsy, their families and friends. Publishes 'Epilepsy USA' magazine and a wide range of informational materials for people of all ages. Referrals to local affiliates (many of which have employment-related programs).
8301 Professional Place East
Landover, MD 20785
Pyridoxine Dependent Kids
Online. 190+ members. Founded 1998. Support group for parents of children with pyridoxine dependency or parents who are using B6 as an anticonvulsant. Offers public and subscribers only message boards.
Charlie Foundation To Help Cure Pediatric Epilepsy
Online. 250 members. Goal is to network and support families using the ketogenic diet to help control their child's epilepsy.
The above information was "verified" as correct on the date at the end of each entry. Since American Self-Help Group Clearinghouse's database is extensive but staffing is limited and information for these organizations can change, it is not possible to keep every entry in American Self-Help Group Clearinghouse database completely current and accurate. Please check with the organizations listed for the most current information.
For additional information on self-help groups, please visit the American Self-Help Group Clearinghouse web site at http://www.mentalhelp.net/selfhelp
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