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Ataxia

Self Help Clearinghouse

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Friedreich's Ataxia Parents Group (FAPG)

Online. Support for parents and guardians of children with Friedreich's Ataxia or other childhood onset ataxias.

Website: http://www.faparents.org

Verified: 2/14/2013

INTERNAF

Online. Provides support via an international e-mail based forum to exchange information and support for those who are diagnosed with ataxia. Open to patients, families and friends. Also has links to yahoo support group and other worldwide support groups online.

Website: http://internaf.org

Verified: 2/14/2013

National Ataxia Foundation

International. 73 groups. Founded 1957. Assists families with support programs, ataxia information and resources. Provides education for professionals and the public. Promotes research into causes and treatments of ataxia. Newsletter, assistance in starting support groups, organizing fundraisers, and various Fact Sheets are available.

Write:

Nat'l Ataxia Foundation

2600 Fernbrook Lane Suite ll9

Minneapolis, MN 55447

Voice: 763-553-0020

Fax: 763-553-0167

Website: http://www.ataxia.org

E-mail: naf@ataxia.org

Verified: 1/9/2013

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