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Self Help Clearinghouse

This information is provided as a resource and does not constitute an endorsement for any group. It is the responsibility of the reader to decide whether a group is appropriate for his/her needs. For evidence-based information on diseases, conditions, symptoms, treatment and wellness issues, continue searching this site.

Friedreich's Ataxia Parents Group (FAPG)

Online. Support for parents and guardians of children with Friedreich's Ataxia or other childhood onset ataxias.


Verified: 2/14/2013


Online. Provides support via an international e-mail based forum to exchange information and support for those who are diagnosed with ataxia. Open to patients, families and friends. Also has links to yahoo support group and other worldwide support groups online.


Verified: 2/14/2013

National Ataxia Foundation

International. 73 groups. Founded 1957. Assists families with support programs, ataxia information and resources. Provides education for professionals and the public. Promotes research into causes and treatments of ataxia. Newsletter, assistance in starting support groups, organizing fundraisers, and various Fact Sheets are available.


Nat'l Ataxia Foundation

2600 Fernbrook Lane Suite ll9

Minneapolis, MN 55447

Voice: 763-553-0020

Fax: 763-553-0167



Verified: 1/9/2013

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