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Barth Syndrome Foudation

Barth Syndrome

Self Help Clearinghouse

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Barth Syndrome Foudation

(MULTILINGUAL) International. Founded 2000. Offers support to persons with Barth syndrome (cardiomyopathy, neutropenia, underdeveloped skeketal musculature and muscle weakness, growth delay, excersize intolerance, cardiolipin abnormalities, 3-methylglutaconic aciduria) and their families. Provides information, support, awareness, medical database, diagnostic and clinical descriptions and fact sheets. Moderated listserv referrals, pen-pals and biennial conference. Peer-to-peer mentoring program.

Write:

Barth Syndrome Foundation, Inc.

P.O. Box 618

Larchmont, NY 10538

Voice: 850-223-1128

Fax: 518-213-4061

Website: http://www.barthsyndrome.org

E-mail: bsfinfo@barthsyndrome.org

Verified: 8/25/2011

The above information was "verified" as correct on the date at the end of each entry. Since American Self-Help Group Clearinghouse's database is extensive but staffing is limited and information for these organizations can change, it is not possible to keep every entry in American Self-Help Group Clearinghouse database completely current and accurate. Please check with the organizations listed for the most current information.

For additional information on self-help groups, please visit the American Self-Help Group Clearinghouse web site at http://www.mentalhelp.net/selfhelp

If you find information that is not current, please contact American Self-Help Group Clearinghouse at: admin@selfhelpgroups.org

Copyright © 2011 American Self-Help Group Clearinghouse. All rights reserved.

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