Congenital Central Hypoventilation
Self Help Clearinghouse
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Congenital Central Hypoventilation Network (CCHS)
Online. Founded 1990. Mutual support for families caring for a child who has congenital central hypoventilation syndrome. Provides online discussion board for families and patients, physician directory, equipment information, moderated online mutual help activities, and other information. Facilitates and supports CCHS research. Holds family educational conferences every three years - see website for news on conferences. Family directory for CCHS families in the USA and around the world available to families via website.
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