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Fragile X Syndrome

Self Help Clearinghouse

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FRAXA Research Foundation

International. 30 affiliated groups. Founded 1994. Support and information on Fragile X syndrome. Funds medical research, investigator-initiated grants and postdoctoral fellowships. Newsletter and literature. Some chapters have support group meetings. Guidelines available on starting a similar group.


FRAXA Research Foundation

10 Prince Place, Ste. 203

Newburyport, MA 01950

Voice: 978-462-1866



Verified: 1/23/2013

The National Fragile X Foundation

International. Founded 1984. Mission includes phone and e-mail support, promoting awareness, education, research and legislative advocacy regarding Fragile X associated disorders (fragile x sundrome, fragile X-associated tremor/ataxia syndrome and fragile X-associated primary ovarian insufficiency). Services include a quarterly journal, regional and international conferences and educational materials (free and fee-based).


National Fragile X Foundation

P.O. Box 37

Walnut Creek, CA 94597

Voice: 1-800-688-8765

Fax: 925-938-9315

Website: and


Verified: 2/12/2013

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