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Histiocytosis Association of America

Histiocytosis-X

Self Help Clearinghouse

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Histiocytosis Association of America

(BILINGUAL) International network. Founded 1985. Mutual support and information for parents and patients with this group of rare disorders. Includes Erdheim-Chester disease, sinus histiocytosis Rosai Dorfman, xanthogranuloma, hemophagocytic lymphohistiocytosis, pulmonary eosinophilic granuloma, histiocytosis and familial erythrophagocytic lymphohistiocytosis. Website offers the opportunity for patients and families to network. Funds research. Literature and pamphlets (some available in Spanish) and newsletter.

Write:

Histiocytosis Assoc. of America

332 N. Broadway

Pitman, NJ 08071

Voice: Jeff Toughill, President 856-589-6606

Fax: 856-589-6614

Website: http://www.histio.org

E-mail: association@histio.org

Verified: 8/25/2011

The above information was "verified" as correct on the date at the end of each entry. Since American Self-Help Group Clearinghouse's database is extensive but staffing is limited and information for these organizations can change, it is not possible to keep every entry in American Self-Help Group Clearinghouse database completely current and accurate. Please check with the organizations listed for the most current information.

For additional information on self-help groups, please visit the American Self-Help Group Clearinghouse web site at http://www.mentalhelp.net/selfhelp

If you find information that is not current, please contact American Self-Help Group Clearinghouse at: admin@selfhelpgroups.org

Copyright © 2011 American Self-Help Group Clearinghouse. All rights reserved.

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