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Hermansky-Pudlak Syndrome Network

Hermansky-Pudlak Syndrome

Self Help Clearinghouse

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Hermansky-Pudlak Syndrome Network

International network. 2 affiliated groups. Founded 1992. Mutual support and education for families affected by Hermansky-Pudlak Syndrome and Chediak Higashi Syndrome. Networks families together for support. Newsletter and annual conference. Supports research.

Write:

Hermansky-Pudlak Syndrome Network

c/o Donna Jean Appell

1 South Rd.

Oyster Bay, NY 11771-1905

Voice: 1-800-789-9477 (voice/fax) or 516-922-4022

Fax: 516-624-0640

Website: http://www.hermansky-pudlak.org or http://www.chediak-higashi.org

E-mail: dappell@hpsnetwork.org

Verified: 10/4/2011

The above information was "verified" as correct on the date at the end of each entry. Since American Self-Help Group Clearinghouse's database is extensive but staffing is limited and information for these organizations can change, it is not possible to keep every entry in American Self-Help Group Clearinghouse database completely current and accurate. Please check with the organizations listed for the most current information.

For additional information on self-help groups, please visit the American Self-Help Group Clearinghouse web site at http://www.mentalhelp.net/selfhelp

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Copyright © 2011 American Self-Help Group Clearinghouse. All rights reserved.

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