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Hermansky-Pudlak Syndrome

Self Help Clearinghouse

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Hermansky-Pudlak Syndrome Network

International network. 2 affiliated groups. Founded 1992. Mutual support and education for families affected by Hermansky-Pudlak Syndrome and Chediak Higashi Syndrome. Networks families together for support. Newsletter and annual conference. Supports research.

Write:

Hermansky-Pudlak Syndrome Network

c/o Donna Jean Appell

1 South Rd.

Oyster Bay, NY 11771-1905

Voice: 1-800-789-9477 or 516-922-4022

Fax: 516-624-0640

Website: http://www.hpsnetwork.org, http://www.hermansky-pudlak.org or http://www.chediak-higashi.org

E-mail: dappell@hpsnetwork.org

Verified: 1/15/2013

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