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Marfan Syndrome

Self Help Clearinghouse

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National Marfan Foundation

National network. Founded 1981. Network includes chapters, support groups and volunteer telephone support contacts. Provides information on Marfan syndrome and related connective tissue disorders to patients, families, medical professionals and the public. Provides a means for patients and relatives to share experiences and support one another. Supports and fosters research. Conference, newsletter and publications.

Write:

National Marfan Foundation

22 Manhasset Avenue

Port Washington, NY 11050

Voice: 1-800-862-7326 or 516-883-8712

Fax: 516-883-8040

Website: http://www.marfan.org

E-mail: staff@marfan.org

Verified: 1/9/2013

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