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Multiple Hereditary Exostoses

Self Help Clearinghouse

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MHE and Me: A Support Group for Kids with MHE

(member of The MHE Coalition) National. Founded 1999. Provides peers and a supportive community to children suffering from multiple hereditary exostoses (a genetic disorder in which benign cartilage-capped bone tumors grow from growth plates of long bones or on the surface of flat bones). Develops information and literature to assist children and their families in dealing with the disease. Offers free Bumpy Bone Club membership to patients and their siblings. Provides We Care packages to children having surgery and their siblings. Advocacy, information and referrals, phone and e-mail support.

Write:

MHE and Me

c/o Susan Wynn

P.O. Box 651

Pine Island, NY 10969

Voice: 845-258-6058

Website: http://www.mheandme.com

E-mail: mheandme@yahoo.com

Verified: 2/17/2012

The MHE Coalition

National. 3 affiliated groups. Founded 2000. Support and information for persons and their families affected by multiple hereditary exostoses, a skeletal disorder characterized by the formation of abnormal bony growths. Promotes and encourages research to find the cause, treatment and cure. Newsletter, networking, literature, advocacy, online chat, information and referrals, phone support and pen pals.

Write:

MHE Coalition

6783 York Road, #104

Parma Heights, OH 44130-4596

Voice: Chele Zelina 440-842-8817 or 440-821-5038

Website: http://www.mhecoalition.org

E-mail: chelez1@yahoo.com

Verified: 9/2/2011

The above information was "verified" as correct on the date at the end of each entry. Since American Self-Help Group Clearinghouse's database is extensive but staffing is limited and information for these organizations can change, it is not possible to keep every entry in American Self-Help Group Clearinghouse database completely current and accurate. Please check with the organizations listed for the most current information.

For additional information on self-help groups, please visit the American Self-Help Group Clearinghouse web site at http://www.mentalhelp.net/selfhelp

If you find information that is not current, please contact American Self-Help Group Clearinghouse at: admin@selfhelpgroups.org

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