Norris Cotton Cancer Center

A National Cancer Institute Comprehensive Cancer Center

Health Encyclopedia

Topic Contents

Mucopolysaccharidoses / Morquio's Syndrome

Self Help Clearinghouse

This information is provided as a resource and does not constitute an endorsement for any group. It is the responsibility of the reader to decide whether a group is appropriate for his/her needs. For evidence-based information on diseases, conditions, symptoms, treatment and wellness issues, continue searching this site.

National MPS Society

National. Founded 1974. Provides support and hope for individuals with mucopolysaccharidoses or mucolipidoses and their families through research, advocacy, public education and parent referral service for support networking.

Write:

National MPS Society

P.O. Box 14686

Durham, NC 27709

Voice: 919-806-0101 or 1-877-677-1001

Website: http://www.mpssociety.org

E-mail: info@mpssociety.org

Verified: 8/22/2011

The International Morquio Support Group

International network. Founded 1999. Provides support and education for families of children with Morquio Type A. Helps educate health care professionals about this lysosomal storage disease. Funds research. Maintains database of families. Referrals to physicians and medical information, pen pals, phone support, conferences and newsletter, online guestbook and helpful links.

Write:

Morquio Support Group

8164 W. Circulo DeLos Morteros

Tucson, AZ 85743

Voice: 520-850-7264

Website: http://www.morquio.com

E-mail: mbs85705@yahoo.com

Verified: 2/1/2012

The above information was "verified" as correct on the date at the end of each entry. Since American Self-Help Group Clearinghouse's database is extensive but staffing is limited and information for these organizations can change, it is not possible to keep every entry in American Self-Help Group Clearinghouse database completely current and accurate. Please check with the organizations listed for the most current information.

For additional information on self-help groups, please visit the American Self-Help Group Clearinghouse web site at http://www.mentalhelp.net/selfhelp

If you find information that is not current, please contact American Self-Help Group Clearinghouse at: admin@selfhelpgroups.org

Copyright © 2012 American Self-Help Group Clearinghouse. All rights reserved.

Top of Page

This information does not replace the advice of a doctor. Healthwise, Incorporated disclaims any warranty or liability for your use of this information. Your use of this information means that you agree to the Terms of Use. How this information was developed to help you make better health decisions.

Healthwise, Healthwise for every health decision, and the Healthwise logo are trademarks of Healthwise, Incorporated.