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Self Help Clearinghouse

This information is provided as a resource and does not constitute an endorsement for any group. It is the responsibility of the reader to decide whether a group is appropriate for his/her needs. For evidence-based information on diseases, conditions, symptoms, treatment and wellness issues, continue searching this site.

The Myositis Association

International network. 65 groups. Founded 1993. Dedicated to serving those with polymyositis, dermatomyositis, juvenile myositis and inclusion body myositis. Provides education and support. Also serves as a clearinghouse between patients and scientists. Newsletter, research reviews, literature and phone support. Area meetings available in limited areas, as well as annual conference. Guidelines available for starting similar groups. Fundraising for research. Dues $35/yr.


Myosistis Association of America

1737 King St. Suite 600

Alexandria, VA 22314

Fax: 202-466-8940



Verified: 2/12/2013

Myositis Online Support Group

Online. Provides a community of support for patients affected my myositis. Site includes groups, blogs, forums and more.


Verified: 2/14/2013

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