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Myotubular Myopathy

Self Help Clearinghouse

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Myotubular Myopathy Resource Group

International network. Founded 1993. Information for patients, parents and doctors regarding myotubular myopathy, a family of three rare muscle disorders usually causing low muscle tone and diminished respiratory capacity. Exchanging of successes with other affected families. Phone support, literature, information and referrals.


Myotubular Myopathy Resource Group

c/o Pam Scoggin

2602 Quaker Dr.

Texas City, TX 77590

Voice: 409-945-8569

Fax: 409-452-2162



Verified: 4/5/2012

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