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Myotubular Myopathy Resource Group

Myotubular Myopathy

Self Help Clearinghouse

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Myotubular Myopathy Resource Group

International network. Founded 1993. Information for patients, parents and doctors regarding myotubular myopathy, a family of three rare muscle disorders usually causing low muscle tone and diminished respiratory capacity. Exchanging of successes with other affected families. Phone support, literature, information and referrals.

Write:

Myotubular Myopathy Resource Group

c/o Pam Scoggin

2602 Quaker Dr.

Texas City, TX 77590

Voice: 409-945-8569

Fax: 409-452-2162

Website: http://www.mtmrg.org

E-mail: myopaty@optonline.net

Verified: 4/5/2012

The above information was "verified" as correct on the date at the end of each entry. Since American Self-Help Group Clearinghouse's database is extensive but staffing is limited and information for these organizations can change, it is not possible to keep every entry in American Self-Help Group Clearinghouse database completely current and accurate. Please check with the organizations listed for the most current information.

For additional information on self-help groups, please visit the American Self-Help Group Clearinghouse web site at http://www.mentalhelp.net/selfhelp

If you find information that is not current, please contact American Self-Help Group Clearinghouse at: admin@selfhelpgroups.org

Copyright © 2012 American Self-Help Group Clearinghouse. All rights reserved.

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