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Neurofibromatosis

Self Help Clearinghouse

This information is provided as a resource and does not constitute an endorsement for any group. It is the responsibility of the reader to decide whether a group is appropriate for his/her needs. For evidence-based information on diseases, conditions, symptoms, treatment and wellness issues, continue searching this site.

Children's Tumor Foundation

(BILINGUAL) National. 50 chapters. Founded 1978. Support for patients with neurofibromatosis and their families. Promotes and supports research on the causes of, and cure for NF. Provides information, quarterly newsletter, assistance and education. Dues $40/year.

Write:

Children's Tumor Foundation

95 Pine St., 16th Fl.

New York, NY 10005

Voice: 1-800-323-7938 or 212-344-6633

Fax: 212-747-0004

Website: http://www.ctf.org

E-mail: info@ctf.org

Verified: 3/30/2012

Neurofibromatosis, Inc.

National. 10 regional groups. Founded 1988. Dedicated to individuals and families affected by the neurofibromatoses (NF-1, NF-2 and Schwannomatosis) through education, support, a summer camp, clinical and research programs. Newsletter, networking, printed materials, phone support, information and referrals. Assistance in starting groups.

Write:

Neurofibromatosis, Inc.

P.O. Box 66884

Chicago, IL 60666

Voice: 630-530-1115 or 1-800-942-6825 (patient inquiries)

Website: http://www.nfnetwork.org

E-mail: admin@nfnetwork.org

Verified: 9/2/2011

The above information was "verified" as correct on the date at the end of each entry. Since American Self-Help Group Clearinghouse's database is extensive but staffing is limited and information for these organizations can change, it is not possible to keep every entry in American Self-Help Group Clearinghouse database completely current and accurate. Please check with the organizations listed for the most current information.

For additional information on self-help groups, please visit the American Self-Help Group Clearinghouse web site at http://www.mentalhelp.net/selfhelp

If you find information that is not current, please contact American Self-Help Group Clearinghouse at: admin@selfhelpgroups.org

Copyright © 2012 American Self-Help Group Clearinghouse. All rights reserved.

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