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This information is provided as a resource and does not constitute an endorsement for any group. It is the responsibility of the reader to decide whether a group is appropriate for his/her needs. For evidence-based information on diseases, conditions, symptoms, treatment and wellness issues, continue searching this site.

American Porphyria Foundation

National network. Founded 1981. Supports research, provides education and information to the public, patients and physicians. Networks porphyria patients and support groups. Quarterly newsletter, pen pal program, phone network and group development guidelines available. Donation $35/yr.


American Porphyria Foundation

4900 Woodway Drive, Ste 780

Houston, TX 77056-1837

Voice: 713-266-9617 (Mon.-Fri., 9am-4pm CST)

Fax: 713-840-9552



Verified: 9/2/2011

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