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Proteus Syndrome Foundation

Proteus Syndrome

Self Help Clearinghouse

This information is provided as a resource and does not constitute an endorsement for any group. It is the responsibility of the reader to decide whether a group is appropriate for his/her needs. For evidence-based information on diseases, conditions, symptoms, treatment and wellness issues, continue searching this site.

Proteus Syndrome Foundation

International network. Founded 1991. Provides support and education for individuals and/or families of children with Proteus syndrome. Supports research into the cure of this disorder. Newsletter, pen pals, literature and database of families. Fundraising.

Write:

Proteus Syndrome Foundation

4915 Dry Stone Drive

Colorado Springs, CO 80923

Voice: Kim 719-660-1346 (day) or Barbara 901-756-9375 (day)

Website: http://www.proteus-syndrome.org

E-mail: kimhoag201@gmail.com or jakebabs@aol.com

Verified: 8/25/2011

The above information was "verified" as correct on the date at the end of each entry. Since American Self-Help Group Clearinghouse's database is extensive but staffing is limited and information for these organizations can change, it is not possible to keep every entry in American Self-Help Group Clearinghouse database completely current and accurate. Please check with the organizations listed for the most current information.

For additional information on self-help groups, please visit the American Self-Help Group Clearinghouse web site at http://www.mentalhelp.net/selfhelp

If you find information that is not current, please contact American Self-Help Group Clearinghouse at: admin@selfhelpgroups.org

Copyright © 2011 American Self-Help Group Clearinghouse. All rights reserved.

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