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Pseudoxanthoma Elasticum

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National Association for Pseudoxanthoma Elasticum

National network. Founded 1988. Support, education, research and advocacy for persons with Pseudoxanthoma Elasticum, their families, interested others and professionals. Phone support, newsletter, information and referrals. Donations appreciated and tax-deductible.

Write:

NAPE

8764 Manchester Rd., Suite 200

Saint Louis, MO 63144-2724

Voice: 314-962-0100 (voice/fax)

Fax: 314-962-0100 (voice/fax)

Website: http://www.pxenape.org

E-mail: napestlouis@sbcglobal.net

Verified: 2/12/2013

PXE International, Inc.

International. 50 affiliated groups. Founded 1995. Supports patients and educates clinicians. Offers support groups, listservs, literature, semi-annual newsletter, phone and mail contacts. Offers assistance in starting similar groups. Initiates, funds and manages research.

Write:

PXE International, Inc.

4301 Connecticut Ave. NW Suite 404

Washington, DC 20008-2369

Voice: 202-362-9599

Fax: 202-966-8553

Website: http://www.pxe.org

E-mail: info@pxe.org

Verified: 2/12/2013

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