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Robinow Syndrome Foundation

Robinow Syndrome

Self Help Clearinghouse

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Robinow Syndrome Foundation

National network. Founded 1994. Aim is to locate, educate and support persons affected by Robinow syndrome (also known as fetal face syndrome) a very rare, genetic dwarfing syndrome. Online support, bi-annual conventions and family networking.

Write:

Robinow Syndrome Foundation

c/o Karla Kruger

P.O. Box 1072

Anoka, MN 55303

Voice: 763-291-7190

Website: http://www.robinow.org

E-mail: kmkruger@comcast.net

Verified: 8/25/2011

The above information was "verified" as correct on the date at the end of each entry. Since American Self-Help Group Clearinghouse's database is extensive but staffing is limited and information for these organizations can change, it is not possible to keep every entry in American Self-Help Group Clearinghouse database completely current and accurate. Please check with the organizations listed for the most current information.

For additional information on self-help groups, please visit the American Self-Help Group Clearinghouse web site at http://www.mentalhelp.net/selfhelp

If you find information that is not current, please contact American Self-Help Group Clearinghouse at: admin@selfhelpgroups.org

Copyright © 2011 American Self-Help Group Clearinghouse. All rights reserved.

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