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Robinow Syndrome

Self Help Clearinghouse

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Robinow Syndrome Foundation

National network. Founded 1994. Aim is to locate, educate and support persons affected by Robinow syndrome (also known as fetal face syndrome) a very rare, genetic dwarfing syndrome. Online support, biennual conventions and family networking.

Write:

Robinow Syndrome Foundation

c/o Karla Kruger

P.O. Box 1072

Anoka, MN 55303

Voice: 763-291-7190

Website: http://www.robinow.org

E-mail: kmkruger@comcast.net or robinowfoundation@comcast.net

Verified: 2/12/2013

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