Spinal Muscular Atrophy
Self Help Clearinghouse
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Families of SMA
(MULTILINGUAL) International. 31 chapters. Founded 1984. Support and networking for families affected by spinal muscular atrophy types I, II, III, adult onset and Kennedy's. Educational resources, group development guidelines, bi-annual newsletter, phone support and International CDs. Funds research.
Families of SMA
925 Busse Rd.
Elk Grove Village, IL 60007
Voice: 1-800-886-1762 or 847-367-7620 (Mon.-Fri., 7am-3pm CST)
Website: http://www.fsma.org or http://www.curesma.com
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