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Spasmodic Dysphonia

Self Help Clearinghouse

This information is provided as a resource and does not constitute an endorsement for any group. It is the responsibility of the reader to decide whether a group is appropriate for his/her needs. For evidence-based information on diseases, conditions, symptoms, treatment and wellness issues, continue searching this site.

National Spasmodic Dysphonia Association

National. 35 affiliated support groups. Founded 1990. Dedicated to advancing medical research into the causes and treatments for spasmodic dysphonia. Promotes physician and public awareness of the disorder through outreach and sponsoring support activities for people with SD and their families. Educational materials, annual symposiums, support groups, newsletter and on-line resources. Offers assistance in starting similar groups. Membership $40/yr.

Write:

National Spamodic Dysphonia Assoc.

300 Park Blvd., Suite 415

Itasca, IL 60143

Voice: 1-800-795-6732

Website: http://www.dysphonia.org

E-mail: nsda@dysphonia.org

Verified: 9/2/2011

Spasmodic Dysphonia Support Group

National. 20 groups. Founded 1987. Provides members with the latest information regarding spasmodic dysphonia, as well as emotional and practical support. Offers workshops and discussions. Encourages education for the public and physicians. Guest speakers, information and referrals.

Write:

Spasmodic Dysphonia Support Group

67-33 152nd Street

Flushing, NY 11367

Voice: 718-793-2442

E-mail: ahsimons@verizon.net

Verified: 10/19/2011

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