Topic Contents
Sturge-Weber
Self Help Clearinghouse
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The Sturge-Weber Foundation
International network. Members in 50 states and internationally. Founded 1987. Mutual support network for families and professionals involved with Sturge-Weber syndrome, Port Wine birthmarks or Klippel Trenaunay syndrome. Disseminates information, funds and facilitates research. Newsletter, e-news monthly, phone support, bi-annual conference, pen pals and active e-mail support group. Educational materials for schools, parents and clinicians.
Write:
The Sturge-Weber Foundation
P.O. Box 418
Mt. Freedom, NJ 07970
Voice: 1-800-627-5482 or 973-895-4445
Fax: 973-895-4846
Website: http://www.sturge-weber.org
E-mail: swf@sturge-weber.org
Verified: 9/2/2011
The above information was "verified" as correct on the date at the end of each entry. Since American Self-Help Group Clearinghouse's database is extensive but staffing is limited and information for these organizations can change, it is not possible to keep every entry in American Self-Help Group Clearinghouse database completely current and accurate. Please check with the organizations listed for the most current information.
For additional information on self-help groups, please visit the American Self-Help Group Clearinghouse web site at http://www.mentalhelp.net/selfhelp
If you find information that is not current, please contact American Self-Help Group Clearinghouse at: admin@selfhelpgroups.org
Copyright © 2011 American Self-Help Group Clearinghouse. All rights reserved.
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