Health Encyclopedia



Topic Contents

Von Hippel Lindau

Self Help Clearinghouse

This information is provided as a resource and does not constitute an endorsement for any group. It is the responsibility of the reader to decide whether a group is appropriate for his/her needs. For evidence-based information on diseases, conditions, symptoms, treatment and wellness issues, continue searching this site.

VHL Family Alliance

(MULTILINGUAL) International network. 35 US chapters; 18 foreign affiliates. Founded 1993. Opportunity for families affected by VHL to share their knowledge and experiences with each other and the medical community. Goal is to improve diagnosis, treatment and quality of life for VHL families. Newsletter, phone support, education, tissue bank and handbook. Literature available in Spanish, German, French, Japanese, Dutch and other languages. Funds research. Assistance in starting local chapters.


VHL Family Alliance

2001 Beacon St., Suite 208

Boston, MA 02135-7787

Voice: 1-800-767-4845 or 617-277-5667

Fax: 858-712-8712


Verified: 1/15/2013

This information does not replace the advice of a doctor. Healthwise, Incorporated disclaims any warranty or liability for your use of this information. Your use of this information means that you agree to the Terms of Use. How this information was developed to help you make better health decisions.

Healthwise, Healthwise for every health decision, and the Healthwise logo are trademarks of Healthwise, Incorporated.