Topic Contents

Ostomy

Self Help Clearinghouse

This information is provided as a resource and does not constitute an endorsement for any group. It is the responsibility of the reader to decide whether a group is appropriate for his/her needs. For evidence-based information on diseases, conditions, symptoms, treatment and wellness issues, continue searching this site.

United Ostomy Associations of America

National. 240 affiliates. Founded 2005. Dedicated to helping every person with an ostomy and related surgeries return to normal living. Also has support groups for parents of children with ostomies, teens, young adults, gay, lesbian and transgenders and those who have had a continent diversion. Provides education, support to local groups, national identity and affiliate development help, visitation program and quarterly magazine. Chapter development help. Local group directory on website.

Write:

United Ostomy Association

P.O. Box 512

Northfield, MN 55057-0512

Voice: 1-800-826-0826

Website: http://www.uoaa.org

E-mail: info@uoaa.org

Verified: 2/1/2012

The Pull-thru Network

International network. Founded 1988. Support and information for families with children born with anorectal, colorectal or urogenital disorders and any of the associated diagnoses. Disorders include bladder exstrophy, imperforate anus, VATER/VACTERL association, anal stenosis, cloacal exstrophy, Hirschsprung's disease and associated diagnoses. Maintains a database for member networking. Quarterly magazine, online discussion group, weekly chat for members, phone support and literature. Dues $30/year - free membership upon request.

Write:

Pull-Thru Network

2312 Savoy St.

Hoover, AL 35226

Voice: 205-978-2930

Website: http://www.pullthrunetwork.org

E-mail: ptnmail@charter.net

Verified: 3/29/2012

OstomySupport

Online. 600+ members. Founded 2000. Support and education for people with any kind of ostomy, or those who are facing the possibility of an ostomy in the future. Family and friends welcome. Opportunity to freely share ideas, frustrations and experiences.

Website: http://health.groups.yahoo.com/group/ostomysupport

E-mail: ostomysupport-owner@yahoogroups.com

Verified: 9/26/2011

The above information was "verified" as correct on the date at the end of each entry. Since American Self-Help Group Clearinghouse's database is extensive but staffing is limited and information for these organizations can change, it is not possible to keep every entry in American Self-Help Group Clearinghouse database completely current and accurate. Please check with the organizations listed for the most current information.

For additional information on self-help groups, please visit the American Self-Help Group Clearinghouse web site at http://www.mentalhelp.net/selfhelp

If you find information that is not current, please contact American Self-Help Group Clearinghouse at: admin@selfhelpgroups.org

Copyright © 2012 American Self-Help Group Clearinghouse. All rights reserved.

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