Mostly It's Just an Inconvenience
By the time Skylar was 12 years old, he was doing his own three-times-weekly infusion with a clotting factor—a protein missing in people with hemophilia. "Now that I've gotten fairly good at this...I have sort of taken to challenging myself to finding interesting places to do them in. This summer I hiked a lot on the Long Trail in the Green Mountains, and I did one on the top of Glastenbury Mountain, which was kind of cool."
Hemophilia Program in Lebanon, NH