One of the best things that has happened to me is a telephone support group. I had the opportunity to speak with other women in the same or similar situation as me. It brought me great comfort to be able to speak with these women, share our stories, give each other tips on getting through treatment, being able to have questions answered. I got a feeling of hopefulness in a very frightening time in my life.
Karen
On-going support group meetings and classes in many of our locations. Some of these support groups offer a toll-free number that you can call to participate in the meeting if you are unable to attend in person. Contact the location where you receive your care to find out what offerings are available near you.
Learn more about our supportive services
A range of patient- and family-centered services are available to all patients and their families from the moment of diagnosis throughout treatment and beyond.
- Classes and programs
- Complementary Care Program
- Help with making difficult health care decisions
- Oncology nutrition services
- Palliative care
Additional online resources
We also recommend the following links as good sources for information about hemophilia:
- Blood Disorders: An archive of a public health webinar series about blood disorders on the CDC website.
- Hemophilia Information: Information about hemophilia and how to stay as healthy as possible on the CDC website.
- National Hemophilia Foundation: The Foundation's website provides information about all bleeding disorders.
- New England Hemophilia Association: The Association's website provides information and resources.